Where did we leave off..

 

.....OK, so the one hour EEG at Methodist came back completely normal.  However, I was still not convinced we were in the clear as it did NOT appear that Retta had an episode during the recorded hour.  When we returned home, she continued to display the odd movement...and we continued to worry. After several conversations with Dr. Tardy we considered various options. We decided to wait until the morning for Dr. Tardy to finally connect with Dr. T.  

 

Dr. T sent us back to the hospital for the 24 hour EEG (which should technically be called a 40 hour EEG...because that is how long it took to get admitted, up to our room, seen by the hospitalist, orders written and the EEG tech to come up to the room and finally hook Retta up to the machine). This time the EEG was complete with a video camera...and I'm sure an auditory recorder which recorded our every conversation while we were there! Fabulous! They used superglue to hold the leads onto Retta's scalp which was very stinky and I'm sure not healthy to breath in.

 

 

11-16-12

24 hour EEG.

 

                                                 

 

Keeping a toddler's constant motion out of a 'zillion leads was the ongoing task. We rotated toys and books like crazy! Retta became bored with most of them and threw them over the railing and on to the floor. But it was all worth it because whatever the odd movements were...they were definitely caught on EEG & video! We were given a journal and small button to push everytime we noticed an episode.

 

 

That evening, Retta and I decided to split the dinner tray that was delivered to the room. We were starving...and willing to eat anything! Even hospital meatloaf!  Retta LOVED IT! Greasy mystery meat hit the spot!

 



 

The Ipad saved us! We downloaded "Christmas Song Collection" which was a hit! We made the hospital staff ring in the holidays whether they were ready or not!

 

 

Finally...asleep.

 

 

 

" Let's go home!"

 

We didn't hear from the neurologist the Sunday following our discharge. We were told, "No new is good news!" But we did receive a call that Monday morning to come in first thing Tuesday to talk with Dr. T.

 We were told that the odd episodes were absolutely NOT any form of seizure activity! Dr. T shared that it would be easiest to explain to others that the odd movement is a form of a TIC. Not something I was extremely excited to hear, by any means...but Dr. T assured us that Retta would out grow the movement.  Compared to what the movements could have indicated; we are very happy!

 

 

 

And when we made it home...Retta had a LOUD arrival in the mail!

Aunt Nicole C. sent a magical wand and princess mirror! Retta LOVES them both!

(They have made it through the wash several times and have yet to loose their magical powers!)