Wednesday, February 13, 2013

Embracing CHANGE!

The SWEETEST little toes...
 that
CHANGED
MY
LIFE!!!
(I can't get enough of them!!!!!)


Having a typical child
changes you.
But it's much different
than the change 
that happens when
you have a child with
a disability.

Family members and friends
who knew you before the 
birth of your child with a disability
will comment on how you have changed.

And when you think about it,
you know they are right.

How could you not change?
Your expectations change.
The vision of your 
child's future changes. 
You begin the journey
of acceptance.
You have to adjust to
your new "normal".


You start celebrating,
and I mean REALLY celebrating
milestones that people
with typical kids take for granted.  

You don't give up on your dreams
for your child but your
dreams definitely change. 

You try not to compare your child
with typical kids but sometimes
it's so in-your-face  
that it's hard not to.
And then you realize
that it has to stop.
It's not fair to your child 
and it's not fair to you.
You continue the journey
of acceptance.
Accepting your child 
just as they are.

You begin to see
the BEAUTY in them
more than ever before.
Their joy.
Their unconditional love.
Their perseverance.
Their determination.
You start to notice
the things they CAN do
instead of focusing on what
they haven't mastered yet. 
 You change.  
 
You become a research fanatic,
equipping yourself to be the
best advocate possible
for your child.
Medical terms and
educational terms you
had never heard before
the change become
everyday words to you.

When you see another parent
of a differently abled child
you feel drawn to them
when you once would have
walked right past without
even noticing them.

You use words like 
"differently abled" instead of
"special needs" or 
"mentally handicapped".
The word "retarded"
makes the hair on the
back of your neck stand up.
Even though you try not
to let it bother you.
Even though you used
the word yourself
before the change. 
Even though people have
labeled you "too sensitive"
about it.
You can't help it.
You change.

And as you become 
aware of people  
who are prejudiced
against your child 
you also become aware
of your own prejudices
 against others.  
Your own closed
 mindedness comes
to light. 
You don't want 
to stay that way.
You soften.
You change. 

Some of your old friends
accept the change.
Some don't.
They distance themselves.
Maybe they don't 
know what to say.
Maybe they just can't
handle it all.
Whatever the reason,
they are no longer around.
You make new friends.
Friends who get it.
Friends who become like family.
Friends who become your lifeline.

Me?
Yes.
I have changed.
I'm probably a
little less flippant,
a little more serious.
I find joy in the
simple things and
beauty in places I
would have never 
bothered to look
before the change. 
I avoid words like
"tolerance"
and embrace words like
"acceptance".
I am committed
to judge less and
forgive more.


This sweet girl 
changed my life.
...And I feel SO LUCKY because of just that.

Tuesday, December 25, 2012

Christmas 2012!

...So we snuck over to Morgan's Wonderland to check out the Holiday in the Park.
IT WAS AMAZING!!!!
We are SO lucky to have such a beautiful amusement park that caters to children and adults with all abilities right in our own back yard!  People have traveled from all over the world to enjoy this one-of-a-kind facility. It was like nothing we had ever imagined!!!
 
Retta slept through most of our little self guided tour. But we were taking notes for when we return!
They have a full petting zoo, jungle gyms equip with slides and swings for wheel chairs, strollers and all...sound, water and sand sensory exploration areas and addition to catch-and-release fishing, train rides, beautiful pavilions and much much more!
 
 
Retta tried out her first see-saw and enjoyed the snow (tiny bubbles) while waiting in line to see Santa.
 
 
We can envision many, many birthday parties to come at Morgan's Wonder land!
 
***
CHRISTMAS EVE 2012
at Grandma and Grandpa's!
 
 
Santa Larry made a surprised appearance towards the end of the night!
This was the third Santa's lap for Retta to sit on this holiday season. 
1) Therapy Links Santa
2) Morgan's Wonderland Santa
 3) Santa Larry.
 
 ...Each experience led to a more and more dramatic response.
 "Why must I do this again?"
"Santa?"
"I don't think so!"
(Maybe next year Santa Larry...maybe next year.)

Santa Larry and Grandpa. Best Buds!

 ***
CHRISTMAS MORNING 2012!!!

"Lets do this!"


Santa delivered LOTS of wonderful toys!

Scooters, musical instruments, baby dolls and more!


Don't forget the clothes!

';1
Opening presents is exhausting!
Relaxing with Uncle Brian.
 
 
 
Taking a ride on Deno the Dino! (Thanks to Grandma and Grandpa and Noah's Dad's Recommendation)
So much fun, we didn't want to go home!

***
CHRISTMAS EVENING 2012
Back in San Antonio at Aunt Julia's house.

 
 
 
I'm pooped!
 
 
 
But it's been a great day!

Sunday, December 16, 2012

Therapy Sleigh Creation!


Barbara, Retta's occupational therapist is full of great ideas!
She is always coming up with exercises and activities for Retta to do around the house...with pretty much what ever we have laying around the house. She had the idea of putting Retta in a box and moving her across the floor with a rope to work her core!
 
 
Szymon took the idea and created a Christmas Sleigh Ab Machine!
 
 
Complete with candy cane reigns and a piece of old carpet for extra ZOooom!!
The wilder the ride the better!
We practice "GO" ......and......."STOP!"
 
 
Retta attempted to share the sleigh with her boyfriend Burke while he was over for Christmas crafts one Saturday afternoon... but she was more interested in pulling his hair.
....Sorry Burke.
 
Naked and ready to paint!
 
While decorating the Christmas tree I came across the ornament I made with Retta's itty bitty hand on Christmas day last year. (I absolutely could. NOT. believe how small it was)! I had to something to capture her hand print again this Christmas!
 
 
This year's print was much more chubby!
We made nice plump tree branches.
And Yes! ....We wore trash bags for protection!
 
The sleigh has yet to get old!
 
 I am guilty of piling laundry up in the basket (on top of Retta) and taking her and the laundry wherever it needs to go to be folded.
 
Retta thinks it is hilarious!!!
She LOVES to dig for dryer sheets...and then fight Buzi for them!